The Emily Center at Phoenix Children's Hospital provides vital educational resources for families, offering:
Personalized Health Information: Tailored, easy-to-understand resources to help families make informed decisions about their child's health care.
Educational Resources: Covers a wide range of topics, including children's health, wellness, and coping strategies, to empower families in managing health concerns.
Guidance and Support: Assists families in navigating the healthcare system, connecting them with appropriate support services, and helping them manage their child's medical journey.
Phone: 602-933-1400 Email: emilycenter@phoenixchildrens.com
Ryan House offers a range of services for children with life-limiting conditions and their families:
Respite Care: Provides temporary relief for families by offering care for children with complex medical needs.
Pediatric Palliative Care: Focuses on providing comfort and improving quality of life for children with serious illnesses.
End-of-Life Care: Offers compassionate support for families during end-of-life transitions, ensuring a peaceful and dignified experience.
Family Support: Provides emotional, social, and practical support to families coping with the challenges of caring for a child with a life-limiting condition.
Phone: (602) 200-0767
Email: info@ryanhouse.org
Families can access services like case management and medical assistance once both DDD and ALTCS are approved.
DDD (Division of Developmental Disabilities): Provides support and services for individuals with developmental disabilities like autism, cerebral palsy, epilepsy, intellectual disabilities, and Down syndrome.
ALTCS (Arizona Long Term Care System): Offers Medicaid-funded services for individuals who require ongoing care, which can often be provided in the home.
Eligibility & Application: To qualify for these services, a person must meet specific criteria, and the application process includes screenings and interviews.
The Health Care Organizer (HCO), developed by the Arizona Department of Health Services' Children and Youth with Special Health Care Needs (CYSHCN) Program, is a portable toolkit designed to assist families in managing complex health information and coordinating care for children with special health care needs.
Personalized Health Information: Templates to document essential health details, including medical history, medications, and treatment plans.